A short update on the topic: last week our daughter got tympanostomy tubes/grommets and a BERA/BAEP test under anesthesia. Although the tubes improved her hearing a bit, she still has severe hearing loss of 80 dB on both ears. The coming months we will be going through the processes to see if hearing aids can help (ENT doctor says that is unlikely to be really succesful) and if she would be a candidate for cochlear implants.